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Hi there

Linda is right - he needs to be worth your worry
And in that life is never according to our plans - otherwise we would not have MS. BUT there are people who will prove themselves to you and will love you and he needs to realize this is also not your fault and love you rather for dealing with and being strong in the face of this Disease, than not love you for having it.
He should see the stength you do have to overcome things and deal with it every day - how would he feel if the roles were reversed ? You know you are worth it and you dont need that - you be strong and hang in there
We are all here for you
Nats

Hi Berlinda
If he is worth anything, then of course he will still love you!!!
Life offers no guarantees - he could also end up injured or damaged in some way - would you still love him then??
If he loves you for your ability to walk or carry a cup of coffee without spilling then he is not worth having
Over time everyone becomes "less beautiful" - saggy and stretchmarks etc - this will affect him as well as you.
If this is a deal breaker for him, then move on
If not - have faith in his integrity, and live on without doubts
There a many of us who give thanks daily for our partners who love us whatever!!!!!!!!!!
Linda

Hi there   i cant keep up with his willing spirit and determination. Will he still love me if my body-mind fails me. The slightest change in my body makes me so nervous! I just want to give him all he needs. I can do it now but what if?

Hi all,
Well, thanks for the various replies.
The GP gave me the cortisone on an out-patient basis.  The neuro diagnosed the MS, but at such a cost.

I have since contacted the Medical Scheme Society, and according to them, the medical scheme HAS to register you for the chronic condition as soon as it is diagnosed - so the forms are with the doctor...

For the interferon / beteferon, their formulary table says you have to have two relapses, BUT it only applies to that... as for the other costs (cos now the GP visits, the neuro visits, the MRI, the solumedrol, all that has gone off our medical savings account) that has to come as a PMB...

So I saw my neuro again today, purely because the vertigo is so bad.  And all I get told it to be patient (which I do not do well, so BTW) - I have to wait for my brain to restabilise with this new condition. Argh.

As for the medication, well - I am thinking I should go plead my case with my dad this weekend, ask if he will pay for the Campath for now... so at least we can stop the progression of the disease. 

Other than that, it has been an interesting week so far.  All I can say is Yoza Weekend!!

A very interesting article re: CCSVI and treatment stumbling blocks.

http://www.facebook.com/notes/direct-ms/why-national-ms-societies-are-not-acting-in-the-best-interests-of-persons-with-m/149801465049361

Hi all -

Interesting read this weekend, I was reading the new Woman and Home - there was an article on backache. Skimming the article i read something almost at the end of the article that says there is a link between VIT D defincies and back ache. I cant remember the fine print, BUT along the lines of low VIT D levels will cause the tissue around the spine to become soft - causing issues with the surrounding nerve endings.... I have been hearing more and more about this VIT D and all - and seems there is more of a reason to get the sunlight...
NOW - how do you get the sun when you dont like being in it Ha ha ha - I got the tablets for the days I cant
Food for thought - hope you have a good one all
Nats

Hi Anthea

Thank you for your comment - would like to comment myself on your query, if I may...:

* Who is the prinicpal 'earner' (yourself, spouse etc) - that person should find out by phoning SARS or...
* Do you have someone that does your Tax Returns?

Im sorry, Im not a boffin on this matter, everybody has a different set of circumstances, earnings etc...so one needs to start from the above and take it from there?

However, would ask that whatever you find out you kindly share as we are all citizens of this country and if we can get a spare buck out of the goverment....... GO FOR IT!

Regards,
Wendy

This topic has been moved to Mainstream Commercial MS modifying drugs.

http://www.multiplesclerosis.co.za/forum/index.php?topic=275.0

Hi there

New on here. My wife was diagnosed a while ago and is now on Rebif - she is obtaining great support from her Neuro and the drug company supplying Rebif. O! and medical aid is paying!

She is now suffering from the side effects of rebif which include the flue like stuff and lots of pain and fatigue. The day after the injection is very severe for about half of the next day and lasts much longer if she does not rest. For the rest of the time she is doing great. She has just started the second month. Drug company did warn us that this could last 4 to 6 months. Those on Rebif how long would you say that you suffered the side effects?  My wife is very possitive and sometimes to energetic, but this does knock her sideways.

Martin

Hi Samantha,
I was diagnosed earlier this year, I am also struggling with my medical aid.  They require you to have two relapses as clinical proof, though I don't know why they have to get proof if you have given them your lumbar as well as blood and MRI results.  I have been told that I am a financial risk, AWESOME, so for the past 13 years that I was fine, paid all my premiums, I was not a financial rist, but now that they have to pay, it is another story.  I would suggest contacting the MS associationn, they have been wonderful so far with assisting me and I am now going the legal route, I have had my two relapses as they require and still have no joy .
Good Luck and don't give up.