20's and thriving?

[Laska]

I think this is such an interesting topic and I would honestly love to meet and chat with people in there 20's. I am 28 and man it is a struggle. My friends dont understand - my parents are trying very hard but the understanding is limited. My hubby is so understanding but it still sometime feels like he expects so much more from me as we are newly married and he deserves and active, youthful life. He had to make as much changes as me and we had to compromise a lot of things for my stupid ms.

My friends can't understand that why things aren't as simple "just climb the steps" "just sit on the floor" stupid things like that but the fact is it takes me forever and all my concentration to climb steps getting up from the floor is missing impossible. If I say I'm tired - they say"I know what you mean Im also tire" yeah right whatever!

I want to be so much more for my hubby there but am really limited - I have good and bad days. My parents classified me as being lazy up until they found out I had ms so theres a lot of judgement. Its beyond my gran that I look fine, and Im young how can I be sick and she thinks I must just get pregnant then I will be healed!!!

I think a lot of people still thinks its in my head, but anyway - as 20's is suppose to be the prime of your life but you have to leave parties early - pre plan everything make sure all is in place! People expect so much more from you, how do you tell them you can't? How do you explain to them that if I do this now, I am going to pay the price next week via fatigue pins and needles or whatever!? My hubby's family just refuses to ever admit I have MS, they think it's in my mind and if they dont talk about it or mention it it is not real!

So I dont want advice please, I just want some sharing and understanding to see Im not alone out there!

[Wendy]

Hi Laska

Hope you dont mind me writing to you!   Im not in my 20's but I can hear your frustration and anger, and believe me, that is a universal language we understand.

You know they always say age is in the head, or you are only as old as you feel? tell that to a PwMS... You must really be tired of making excuses, so rather print out some pamphlets or stuff about MS and post it, mail it, copy it, leave it lying around etc so that people get to understand whats what.

I cant give you too much advise on the subject, im recently dxs (09.09.08) so still trying to make head or tails of these feelings whirling around in my kop, but what I can tell you is that just listen to your soul, and you will do the right thing FOR YOU...One tip I have picked up on this forum is to NOT STRESS - and you KNOW how easy that gets accomplished in todays lifestyle hey....but hang in there and take it day by day and so we get thru each day!

I will pray for strength for you my girl...Regards, Wendy

[Linda]

Hi Laska

I have to agree with Wendy on this one - I, too, am no longer in my 20's - Heck, I am no longer in my 30's or 40's!!

I know that our daily challenges are not the same, mine are slightly different, as it is no longer expected of me to be a bundle of never ending energy or dance the night away - but I think that our frustrations are the pretty much the same!

One of our challenges is education - people do not understand. You do not look sick. If you had a broken leg they would be way more understanding! Slowly slowly catchy monkey. You are going to have to - bit by bit, foster some understanding in those around you, and slowly slowly the awareness will grow. There is no quick fix for this. In my case - one day I sat my mother down and had a heart to heart where I told her to keep quiet and just listen as I tried to explain this weird and wacky disease. It was not a roaring success - but - it was a small step forward!

Any other suggestions out there?

L

[Wendy]

 
Hows this.......

"Im no longer in my 20's...........30's but am however only a Year Old in my MS!!!!!!!!!!!!!!!!!!

Laska im currently fighting some depression monster but please mail me and lets get chatting girl................

What frustrates one more?

"The fact that YOU are so ignorant as to NOT know what im going through..............ot the fact that IM so used to doing things myself and now cant.........worse, must trust others to do it..............
ARGH!!!!!!!!!!!!!!!!!!"

hang in there................

xxxxxx