I am currently 21 years old, however I have been living with these symptoms from the age of 15.
My symptoms first started when I would take a hot bath or be in a warm environment. The first part of my body that lost sensation, was my left hand. I began dropping things and losing my balance.
When I first went to a GP about my symptoms, she said that it was most likely due to my hypoglycaemia and it’s nothing serious. So, as one does, I listened to the doctor and tried to move on with my life.
By 17, I had stopped having sensation on the entire left side of my body and was experiencing a great amount of weakness on my left side as well as a loss of balance. I would be walking from one room to the next, and somehow manage to Walk into doorways or bump into walls. I found it very odd, but shook it off as me being oblivious due to the fact that I had my eyes glued to my phone the whole time.
What actually led to me eventually having neurologists and tests done for ms, was the end of 2011 when I came back from a holiday in Zanzibar. I had developed a very bad case of strep-throat which led to me developing an extreme form of streptococcal chorea. I was hospitalized for 3 days when this happened, and doctors told me that the reason I have these strange jerking movements, that are completely out of my control, was because of ANXIETY. Can you believe it? They put it down to anxiety.
6 months to a year down the line, I was still having the involuntary muscle movements, unexplained weakness in my left side and loss of balance and coordination. In 2012 I went to a neurologist Named Dr. Flemming about it, and he diagnosed the involuntary muscle movements as Streptococcal chorea. He completely ignored my complaints of numbness and weakness, and just sent me for an MRI because it was a compulsory thing to do.
The MRI results came back normal, so there was still no form of diagnosis or explanation for my numbness. The chorea went away, but the numbness stayed.
In 2013, I went to a chiropractor (Dr. Fransie) who was the first to suggest that I have MS. She reffered me to a doctor (honestly can’t remember his name) who performed an electric shock test on me. He said that I have extremely over-firing nerve impulses, leading to exaggerated responses to the shocks.
He then sent me to Dr. J Pearl who then had me undergo a lumbar puncture. The results of that came back normal, except for the fact that I had levels of vitamin B12. She said , however, that my symptoms are absolutely typical of MS. However, because I’m most likely still in the early stages my results are inconclusive. She said she wanted me to go through a 5 day cortisone drip treatment to try reduce any inflammation.
At the end of last year (November 2014) I had optic disc swelling and had to go to an ophthalmologist for treatment, as I had peripheral blinding due to the swelling. His name IS Dr. Dos Ramos and he also said it’s most likely MS.
I have now gone to a homeopath, Dr Peter Brak, who also says I have symptoms typical of MS. He has been treating me with a homeopathic remedy known as Agaricus and It has helped me so much. It managed to decrease the swelling of my optic disc, and improve some of my symptoms.
With regards to my emotions about it, I have my good days and my bad days. It can get extremely frustrating at times, especially when I walk into things or drop things even if I’m holding it tight. It’s also extremely exhausting at times, especially now as I stand for about 3 hours at a time.